Thanks so much to everyone with a SIRVA (shoulder injury related to vaccine administration) who has filled out the SIRVA Survey so far (or as I call it, the Sirvey). I hope to use your answers to try and figure out how we can get better and get back to our lives. As soon as I can, I’ll have some more blog posts telling you what people have said in the Sirvey.
So far, most of our respondents have not recovered from SIRVA yet, and are still in the phase of searching for answers (like me). This gives us a good initial picture of who gets SIRVA, where, and how they got it. It also tells us what treatments our doctors and other medical practitioners have tried to give us, and whether we think they have been helpful.
The Follow-Up SIRVA Survey, which is much, MUCH shorter, is for those of you who’ve already filled out the initial Sirvey, and have changes you want to update us with. This can be:
- Changes to symptoms (for better or worse, hopefully better)
- New diagnoses from different medical practitioners
- New treatments attempted, and whether you think they helped
- Anything else…even if you just want to vent about it. I’m listening!
Thanks so much for your time. Those of us with SIRVA are spread out all over the world; it is my great hope that by gathering this information we will learn so much by centralizing our knowledge.