NEW!! SIRVA Doctors

Nearly every person who has responded to the SIRVA Survey has reported seeing a doctor or health care professional who had never heard of SIRVA, and/or was skeptical about whether it exists. In my experience, I have found about half of the doctors I’ve seen to be knowledgeable about SIRVA and the other half completely unaware.

HELP US FILL IN THE MAP!! Have you seen a doctor about SIRVA and had a good experience (found them knowledgeable, compassionate, helpful)? Let us know in the comments, so other people can seek out good doctors near them. I’ll add your positive reviews to the map. Negative reviews of doctors will stay in the comments as a warning to others to stay away!

EDIT 11/21/19: I heard some negative things by email about a doctor who had previously been posted on the map and I removed that doctor from the map. I am really sorry if you see someone listed here and find them unhelpful, or to have a bad attitude. Please let us know and I will adjust the map accordingly! I would love to fill in MORE DOCTORS who are knowledgeable so let me know if you see someone and have a good experience with them!!! But it is important to be aware that the current state of research on treating SIRVA is very limited and not to blame the doctor if they are uncertain of the best course of action for you. I’m just looking for doctors are good at their jobs and who won’t tell you “this is not a real thing”.

 

(Warning: I’m using a free map widget here, so it may not be super functional. Hover over a marker to see a basic description of the doctor or click on the marker to be taken to their webpage/contact info.)

DISCLAIMER: I have not personally seen most of the doctors listed on this map. Some of them are listed because they are authors or co-authors on papers about SIRVA, so I assume they’re familiar with it, but make no promises about how good they are. If you see one of them and think they’re terrible, leave a comment and I will remove them from the map.

14 thoughts on “NEW!! SIRVA Doctors”

  1. I have seen one GP and one orthopaedic doctor about SIRVA. Both denied its existence. The orthopaedic insists it is arthritis…..
    Any suggestions.

  2. I’m sorry, Anita, that is such a hard experience. The best success I had was by having a few medical journal articles with me for my appointments. Depending on the doctor’s personality, it’s not always easy to get them to even look at the papers, but in at least one case with an orthopedist who did not believe in its existence, by the end of my visit he had turned around 180 degrees. I described those experiences here: http://sirvasurvey.org/talking-to-doctors-about-sirva/

    I know it’s not easy to keep looking for a new doctor, but you might try another orthopedist and try the technique of printing out and bringing those papers (I recommend which ones to take on that link above). If that’s not an option or you don’t want to start over, and you return to the one who thinks it’s arthritis, you can try again with the papers, but in any case I would definitely recommend insisting on an MRI. If he/she is convinced it’s arthritis, they may not be willing, but in that case I would DEFINITELY find a new one who will order an MRI. I don’t know enough about arthritis to know if it will be distinct from SIRVA-related damage on an MRI, and it’s no guarantee that a “smoking gun” for SIRVA will appear, but it is the gold standard for figuring out where the shot hit and what exactly was injured in the shoulder, which will guide treatment the best. Good luck and please keep me posted.

  3. Dr. Andrew Veitch an orthopedist in Albuquerque has heard of SIRVA and is a nice person and sympathetic. He seems very against surgery. Says the only thing to do is wait and let it resolve.

  4. Hi, can you share the paper written by Eric Strauss? I’m going to see him (thanks to this site!) and would like to read the paper but can’t find it.

      1. I am wondering if you have heard any feedback on the visit with MD Strauss. I am in northern New England, and haven’t found anyone who has been able to heal my shoulder. I’ll drive to NY if it’s worth it!!

  5. I am looking for the Sirva paper supposedly written by Dr.Mark Floyd in Rome, GA. I have already had one surgery and currently involved in a lawsuit from a SIRVA injury. I was thinking of going to see him since he is only 3 hours from me. Do you have any info on the paper he wrote? I would love to see it! Thanks!

    Leigh Ann

  6. I found the above map helpful. Ive been having a hard time finding a doctor that knows about SIRVA. The above map led me to someone in my area that may be familiar with SIRVA. I am hoping for good results. But typically, which doctors treat SIRVA? Orthopedics or Rheumatogists? Thank you

    1. Hi Marie, please keep me updated about how it goes with the doctor you found on here.

      A few people who have made comments on this website have seen rheumatologists but I have not, myself. So far I haven’t heard back that any particular rheumatologist has been very helpful. But their perspective could be very interesting since they are more familiar with immune-system-related processes than orthopedists, maybe.

      Finding a good orthopedist has been my recommendation usually, but many are unaware of SIRVA and some may try to pin your symptoms on another shoulder injury. Even for those who are aware of SIRVA, there is not much SIRVA-specific knowledge out there so they will be as helpful as they can be given what’s medically understood right now (cortisone shots? surgery? etc). At the very minimum they can treat a shoulder injury the way they would treat a non-SIRVA injury with similar damage, and that may be the best option anyway until more is known.

      Best of luck and please let me know if you have a good experience with any particular doctor, rheumatologist, orthopedist, or otherwise.

  7. I got sirva 5 months ago. Im one of the lucky ones. Mine went bilateral after 8 days. Pain was 90 on scale 1-10. 7 doctors gave me deer in headlighta look. None would read papers I brought in about sirva. After 1 month I begged doc to do something. I got rx for methyl-prednisone. Within 3hrs I felt better. Overnight I improved even more. But I am still very sick and pain is 8-9 on a 10 scale.

  8. Came across this site after ongoing should pain after a vaccine. I tried to make an appointment for Dr Eric Strauss about SIRVA hoping for an initial diagnosis, but his office says he only takes surgical patients and I can only see him with a referral from a general ortho. Still trying to figure out who to see.

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